outside
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the hospital. And we walk in together. I think
we met my brother on the way up to the
room, or perhaps outside the room. Appar-
ently my mother was not able to swallow any-
more. I hadn’t seen her in, I think, about two
months. I had called from time to time, but
because she was unable to speak, she would
try to speak on the phone but end up crying,
so I alternately thought I should just call and
not have her talk, or I should not call so as to not make her cry. So I probably didn’t call her
as often as I might have. I certainly didn’t call her as often as I wanted to, because the crying was hard for both of us. She was such a
dynamic person, it was harder to hear her not
be able to speak than it was to see her not able to move.
So we went in to see her. My father had
called the night before my brother did, and
he said she had not been eating, and I forget
what else he said, but he was considering tak-
ing her to the hospital. I suggested he take her right away—from his description she needed
to be there—but he was wondering, vacillat-
ing. I believe it was my brother who finally
convinced him to get her to the hospital.
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Went in. She really looked very “shell-ish,”
nearly unable to move, unable to eat because
she couldn’t swallow. I went in, gave her a
hug, Sef gave her a hug, I did my best to not
cry and I didn’t. My father, of course, takes
me outside immediately to talk to me “in
secret”—he was always telling secrets, always
took me aside to whisper things—“Your
mother’s not doing well, you’re mother’s not
this or that,” as if my father still thought she was 40 and playing croquet, as if it were to
be a surprise to him that she’s sick. When he’d
call and say she’s not getting better, I’d say,
“What did you expect, this is what happens
with Parkinson’s.” I think he was trying to hold on to her, but I found it frustrating. He would
whisper it because he didn’t want her to hear.
So I sat with her, held her hand, Sef was on
the other side, held her hand, talked to her.
She made a few sounds here and there, she
could move her eyes a little bit. Apparently a
Swallow Test had been ordered—I’m not sure
what the logistics of a Swallow Test are, I
really don’t need to know—but they came
and got her, wheeled her down, and before
they wheeled her back up, I spoke with the
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nurse and asked what the plan was, what the
possibilities were. If the Swallow Test came
out well, she would be able to eat. If the test
did not come out well, she would be unable
to eat, and the only way she would be able to
receive nutrition would be through a tube
going through her side and into her stomach.
But the Parkinson’s medications can only be
administered orally. So it means the Parkin-
son’s would get worse and worse. So even that
was not the best option. If she didn’t get the
tube, she also wouldn’t get the medication.
So IV feeding would be useless.
My brother’s wife, Amy, worked at the hos-
pital as a pharmacist, so anything needing
clarification were made clear, She explained
that the Swallow Test indicated she couldn’t
swallow. That even ice chips would very eas-
ily be aspirated. She was wheeled back into
the room, put back in the bed, and my father
pulls the nurse outside and around the cor-
ner—and by then a friend arrived, this guy I
didn’t know—and my father asks the nurse
the results of her test.
“Why don’t you ask in front of mommy?”
I say.
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The nurse cuts him off and says, “She has a
right to know, and I will not discuss this with
you unless she’s present.”
I thanked her, and we walked back into the
room. The nurse addressed my mother
directly. She told her that the Swallow Test
indicated she was unable to swallow, would
aspirate anything she tried to eat, was at risk
for choking, that the