collecting my scraps of numbers to make up spreadsheets about the costs weâre facing for things like the Long-Term Careâs Elimination Period (theyâll cover assisted living, but only after youâve paid your own way for a hundred days or thirteen thousand dollars, but what if they donât approve her at all? It can happenâFelix read about it in the Times!). On top of everything, weâll have to keep the apartment till we know whether Ma will really be well enough to move back.
The alternative to assisted living is home health aides, also covered in part by Long-Term Care Insurance, which, thank God, I got years ago when I saw this coming ( IF they approve her! Remember the Times!). The Long-Term Care has a limit. The odds are Ma will outlive it, and things will skyrocket after that. Weâll need drivers to help get her to radiation when I canât, meals brought in if she stays home, and oh my gosh, the logistics (not to mention the costs) are insane and weâre all doing our best not to panic.
Our brother, Felix, likes to depict the women in our familyâs behavior in crisis as a bunch of monkeys in a cage, running uselessly around screeching and bouncing off the bars after the winds shift and they catch the scent of the lions (who are obliviously napping, safe in their pens all the way on the other side of the zoo). We monkeys are not making any noise yet, but weâre fidgety.
Felix arrived today, his Subaru Forester covered with mud collected on the messy drive down from Vermont. He used to drive a pickup loaded with chunks of tree trunk. Heâs always got pieces of trees handy for his sculpting, and they conveniently double as ballast on the highways. Felix favors Birkenstocks no matter the season, but layers them with wool socks for winterâheâs a genuine, crusty, foul-mouthed weather-beaten prep-school-followed-by-Ivy-League renegade. The ladies tend to be drawn to him. Heâs been a bachelor for decades now, and his caregiving experience to date has been limited to a series of mostly self-sufficient cats, but heâs willing to try anything as long as the instructions are clear.
Davidâs gone to Richmond to be fitted with George Washingtonâs nose for the John Adams miniseries, and I canât leave the kids for long, but Iâve postponed things like the boysâ wisdom teeth extractions. Weâve lost track of how long itâs been since Ma had a bowel movement, and itâs not looking good. She unhooked the chemo canister before it could produce any results because it made her too sick. Sheâs still not feeling well at all. We have to get her strong enough for radiation.
So weâve spent a couple of days hovering and fussing around with hot water bottles, calling reports in to doctorsâ services (of course, itâs the weekend), and to Colette, who mutters cryptic, ominous things like what wonât go down must eventually come up . There was an interesting episode at the apartment waiting for the phone to ring. We figured out a soothing way to rub Holy Oil on Maâs lower back. When Ma instantly felt some relief, she swore she could smell roses. This was supposed to indicate a miraculous event.
Ma loves these sorts of mystical phenomena, and sheâs always on the lookout for them. I donât feel much need of visions and such to sustain my own faith, and canât always suppress the urge to scoff. But this will become yet another of those memories I secretly like to hold close, and ponder.
Thereâs an experience Ma had at her fatherâs deathbed. Grandsir was a flyer, a captain in the Army Air Service when Maâs mother left her first husband (a dull but acceptable banker type) and her four eldest children (my motherâs half-siblings) to marry him. This was before there was an Air Force at all, when the use of planes in warfare was brand-new and very daring. He flew those little planes with the
Christine Zolendz, Frankie Sutton, Okaycreations